Privacy Policy

Who We Are

PregTrial is a national research initiative working to advance inclusion of pregnant and lactating individuals in clinical trials. Our website (pregtrial.ca) allows users to subscribe for updates and to contact us via a contact form.

This Privacy Policy describes how we collect, use, disclose, and protect personal information.

We handle personal information in compliance with:

  • Personal Information Protection and Electronic Documents Act (PIPEDA) for any activities that cross provincial or national borders or involve federal regulation.
  • Where applicable, the provincial privacy laws in Alberta, British Columbia, and Quebec, which have been deemed substantially similar to PIPEDA and may apply to intra‑provincial data-handling.

What Personal Information We Collect and Why

When you subscribe for updates or use the contact form, we may collect the following information:

  • First and last name
  • Email address
  • Title and organization (if provided)

Purpose of collection/use:

  • To send you newsletters, updates, or other communications about PregTrial.
  • To respond to contact requests or inquiries.

We collect only the information necessary for these purposes, and do so by fair and lawful means.

How We Store and Protect Your Data

  • Personal information is stored securely, and access is restricted to authorized staff only.
  • We use appropriate administrative and technical safeguards to protect data against unauthorized access, disclosure, or loss.
  • We retain personal data only as long as necessary to fulfill the purposes described above or as required by law.

Consent, Use, Retention & Disclosure

  • By voluntarily subscribing or submitting the contact form, you consent to our collection, use, and retention of your personal information for the stated purposes.
  • We will not use or disclose your personal information for purposes other than those for which it was collected, unless we obtain additional consent or are required by law.

Your Rights to Access, Correction & Withdrawal

Under PIPEDA (or applicable provincial laws), you have the right to:

  • Request access to the personal information we hold about you.
  • Request correction of any inaccuracies in your information.
  • Withdraw your consent at any time by unsubscribing to stop receiving updates.

Cookies and Other Web Technologies

When you visit our website, we may use cookies or similar technologies to improve site functionality and understand how the site is used (e.g. analytics).

You may choose to disable cookies in your browser; however, this may limit certain features or functionality of the site.

Third‑party Services and Sharing Information

We do not sell your personal data. If we partner with third‑party service providers, we will ensure they handle personal data in compliance with applicable privacy laws and only use it for purposes necessary to support our services.

Data Breach Procedures

We have policies in place to detect, respond to, and mitigate data breaches affecting personal information under our control. If a breach poses a real risk of significant harm, in accordance with PIPEDA we will follow applicable breach‑notification requirements and notify affected individuals and, if required, regulators.

Changes to This Privacy Policy

This policy may be updated from time to time. If we make significant changes, we will update the policy and post the new version on this site.

Contact Us

If you have questions, requests for access or correction, concerns about privacy or wish to withdraw consent, you may contact us through our contact form

By using our website and submitting your information, you acknowledge that you have read and understood this Privacy Policy and consent to the practices described.